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In February, the Congenital Heart Futures Reauthorization Act of 2024 (CHFRA) was introduced in Congress! A result of nearly two years of advocacy efforts, this flagship priority of the Adult Congenital Heart Association (ACHA) will require a report to Congress on a roadmap for addressing the labor shortages impacting adult congenital heart defect (ACHD) care. |
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CHFRA has already passed both the House Energy & Commerce Health Subcommittee and Full Committee unanimously! This legislation is close to our hearts here at CURA. Our very own Scott Leezer began his career in health policy when working for Senator Dick Durbin, one of CHFRA’s sponsors. Sadly, Senator Durbin’s eldest daughter passed away at 40 due to complications with a CHD. We’re thankful to Senator Durbin and the other bill cosponsors for their longstanding support for the ACHD community. |
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PKD Foundation Virtual Advocacy Day |
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On April 9, CURA supported the Polycystic Kidney Disease (PKD) Foundation’s Virtual Advocacy Day, bringing together 107 advocates from 29 states and Washington, D.C., for 121 congressional meetings—one of the largest and most successful advocacy events for the organization to date. |
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These efforts helped secure two new cosponsors for the Living Organ Donor Tax Credit Act and underscored the need for greater PKD funding through federal grant programs such as the Senate Department of Defense’s Peer-Reviewed Medical Research Program. |
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CURA proudly supported the press program for another American College of Cardiology Annual Scientific Session & Expo. This time the team traveled to Atlanta in early April to support media relations around the world’s largest cardiology conference. The coverage is still coming in, but some of the top hits this year so far include Good Morning America, TODAY, CNN and The Washington Post |
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The Leapfrog Group PR Training |
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On the heels of announcing the inaugural winners of a new designation—“Recognized Leader in Caring for People Living with Diabetes”—The Leapfrog Group invited CURA to present to their team on what public relations looks like today. It also helped us brush up on the latest stats. Did you know that social video generates 1,200% more shares than text and image content combined? We’d love to come to speak to your team too. Contact us! |
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